Ariel Henley
Author
Pub. Date
2021.
Language
English
Appears on list
Description
"A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome"--
At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make...